Elizabeth's Shoulder Updates : Doing Well

Thursday, March 14, 2013

Doing Well

Everything is going really well. I was only on narcotics for 4.5 days, which for this surgery is really great. I got my staples out Monday (I had 30) and was able to start very light PT Tuesday (the staples came out a little early, so we had to wait another day to make sure everything was good to go). Tuesday I was also allowed to shower for the first time after surgery. It was a very long wait and I was very excited to be able to. Now it's just a lot of sitting around and waiting until I can actually do stuff, which can get incredibly boring. There is definitely a time where watching TV is no longer entertaining no matter what you're watching, but school starts back up soon, so I should have something to do once that happens. At the moment we are trying to see if I can start going back part-time, but we have a little more planning to do for that to take place.

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Description

This blog will be used from now on to update people about my shoulder. It is often difficult to remember to update everyone who would like to know what is happening with my shoulder and honestly, sometimes I just don't feel like doing it. Furthermore, articulating information quickly and smoothly has never really been a strong suit of mine. Thus, giving people the information that they want to know in a way they can understand it is always challenging. Feel free to ask any comprehension questions in the comments of a post.

About My Shoulder

My diagnosis: My diagnosis is scapular dyskinesis caused by a detached scapular muscle, a separated AC joint and possibly a hooked superior medial angle. What this essentially means is that my shoulder blade does not move properly. It often gets "stuck" causing it to stick out from my back (a position that I typically call "out"). Once it is in this position, I cannot get it back to its normal position on its own and need somebody to put it "back in" for me, which is pretty easy as long as you are not too squeamish. To do this, I just need someone (they do not have to be a doctor) to essentially shrug my shoulder (I don't have the ability to do it myself). This is painful, but necessary.

How it happened: When I was eleven, in the fall of 2005, I jumped off a swing and landed on outstretched arms. After this, I began to have shoulder pains. It is believed that this is when my scapular muscle became detached. I initially only had pain in many places on my shoulder and a bit of cracking under my shoulder blade. This proved to make it difficult to diagnose what was wrong with my shoulder. However, by the summer of 2010 it progressed into getting stuck like it does today. I have been attending Boston Children's Hospital since this time. Starting in the fall of 2010, I was able to control my shoulder enough to learn how to fix it myself and do what I wanted. However, at the end of January 2012, I crashed sledding, separating my AC joint (Type II separation). Since then, physical therapy has not been able to get it under control. It was agreed that surgery needed to be done to solve the problem. I had one surgery June 2012 to get a better idea about what was going on inside my shoulder. They could not find anything significant besides some inflammation. They gave me a cortisone shot to reduce inflammation. However, though it reduced the problem for a short period of time, it did not fix the problem, and my shoulder progressed back to its original condition by the end of August. After more testing, it was decided that I may have a hooked superior medial angle. I was then sent to a doctor in Lexington, KY who specializes in scapulothoracic joint issues. It was there where the final diagnosis and surgery was decided on.

Some statistics:

7 years

7 doctors

~6 x-rays

3 MRI's

2 CT Scans

2 EMG's